U.S. DEPARTMENT
OF HEALTH AND
HUMAN SERVICES
National Institutes
of Health
Making Data Talk:
A Workbook
National Cancer Institute
Making Data Talk:
A Workbook
How to use this Workbook
This workbook provides an overview of the main points contained in the book Making Data Talk: Communicating
Public Health Data to the Public, Policy Makers, and the Press, as well as practical exercises for applying the books
concepts and communication principles to your unique situation.
The first three chapters review basic communication concepts, from analyzing your audience to building a storyline.
Chapters 4 and 5 shift the focus from conceptual to practical by introducing guidelines for presenting data, as
well as the Organize, Plan, Test, and Integrate (OPT-In) framework developed by the textbooks authors to aid in
planning and executing data-related communications. Chapters 6 and 7 focus on the application of concepts and
the OPT-In framework to the real world in scenarios, such as crisis situations or advocacy.
The ultimate goal of this workbook—and the book Making Data Talk: Communicating Public Health Data to
the Public, Policy Makers, and the Press—is to help you select and communicate quantitative data in ways lay
audiences can understand. You will gain the most from this workbook by reviewing its contents in concert with
the book Making Data Talk: Communicating Public Health Data to the Public, Policy Makers, and the Press,
making note of the tips and guidelines it presents, and completing the practical exercises beginning in Chapter 3
to ensure your understanding of the concepts and ability to successfully apply them.
Table of Contents
Introduction ............................................................................................................................................................ 1
Chapter 1: You CAN Make Data Talk and Be Understood ........................................................................... 2
Table 1.1 Contrasts Between Scientists and Lay Audiences ............................................................... 3
Table 1.2 Tips for Presenting Audience-Friendly Data ........................................................................ 4
Chapter 2: Use Communication Fundamentals to Your Advantage .......................................................... 5
Figure 2.1 Basic Communication Model ................................................................................................. 5
Table 2.1 Types of Sources ......................................................................................................................... 7
Table 2.2 Types of Channels ...................................................................................................................... 8
Table 2.3 Comparison of Selected Lay Audiences ................................................................................ 9
Chapter 3: Help Lay Audiences Understand Your Data ............................................................................... 10
Table 3.1 Audience Biases that Influence Quantitative Data Processing ........................................ 12
Practice Exercise .......................................................................................................................................... 14
Chapter 4: Present Data Effectively .................................................................................................................. 16
Table 4.1 Basics of Visual Symbols ........................................................................................................... 19
Practice Exercise .......................................................................................................................................... 21
Chapter 5: Use the OPT-In Framework to Make Your Data Talk ............................................................... 23
Table 5.1 Roles of Data in Communication ............................................................................................ 24
Practice Exercise .......................................................................................................................................... 26
Chapter 6: Show What You Know: Communicating Data in Acute Public Health Situations .............. 28
Table 6.1 Acute Public Health Situations: Communication Phases and Objectives ...................... 29
Table 6.2 Questions Lay Audiences May Have in Acute Public Health Situations ........................ 30
Table 6.3 Higher-Controversy Situations: Characteristics and Communication Implications ..... 31
Practice Exercise .......................................................................................................................................... 33
Chapter 7: Show What You Know:
Communicating Data in Health Policy or Program Advocacy Situations ....................... 34
Figure 7.1 Public Policy Cycle .................................................................................................................... 35
Practice Exercise .......................................................................................................................................... 38
Conclusion ............................................................................................................................................................... 39
References ............................................................................................................................................................... 40
1
Introduction
Communicating scientific data to lay audiences is difficult. Public health practitioners, researchers, clinicians, and
others in the public health field often have the responsibility of communicating “the numbers” to individuals from
all walks of life. How do you summarize and convey data so they make sense to someone who may not be familiar
with the topic, let alone the basics of epidemiology or statistics? How do you package and present data to answer
the question often asked by busy people with competing demands and time constraints: why should I care?
The National Cancer Institute (NCI) is pleased to introduce Making Data Talk: A Workbook, which is based on
the groundbreaking book Making Data Talk: Communicating Public Health Data to the Public, Policy Makers,
and the Press.
1
This workbook is designed to be a companion piece that enhances the information presented
in the text by Drs. David E. Nelson, Bradford W. Hesse, and Robert T. Croyle, NCI researchers with significant
expertise in their own fields. The information presented in Making Data Talk: Communicating Public Health Data
to the Public, Policy Makers, and the Press reflects a careful synthesis of research from many disciplines, so the
principles described in the book can be applied to a variety of public health issues, not just cancer. This workbook
complements the various communication and education tools and materials available through the NCI.
The content presented in the following chapters will take you through communication concepts, an easy-to-understand
framework for communicating data, and the application of that framework to actual public health situations. Many
chapters also include practice exercises that use real-world examples to reinforce key concepts and help you apply
what you have learned. We hope this workbook will serve as a guide for those looking to successfully communicate
scientific evidence to improve public health.
Office of Communications and Education
National Cancer Institute
2
Sharing information with the public is now one of the standard responsibilities of scientists and public health
practitioners, such as epidemiologists, researchers, statisticians, health care providers, public relations officers,
and others. Communication is a complex process that involves a series of choices about how to convey what
you know or discover in a way that others can understand and, if applicable, use to make decisions about
their beliefs, attitudes, or behaviors.
The Organize, Plan, Test, and Integrate (OPT-In) framework (presented and explained in Chapter 5)
helps health communicators organize the communication process. OPT-In relies on a variety of basic
communication concepts, including audience analysis. In Chapter 1, audiences are discussed in terms of
what they expect when receiving data and how those expectations can be used to craft more effective
communication. After reading this chapter, you will be able to:
Identify some of the differences between health communicators and their audiences.
Explain some basic strategies for making data more audience-friendly.
You are likely to be successful if you use what
is known about your audiences
Effective communication starts with having a strong understanding of your audiences. It is important to note
that the people with whom you wish to communicate have their own areas of expertise, but those areas of
expertise may fall outside of science or public health. The scientific community shares a common culture,
so people outside of that culture may not share the same terminology, beliefs, or interests. See Table 1.1 for
more detail on some common differences between scientists and lay audiences.
CHAPTER ONE:
You CAN Make Data Talk and Be Understood
3
Table 1.1 Contrasts Between Scientists and Lay Audiences
Each of the three lay audiences presented in the textbook – the general public, policy makers, and the press – is
important to the practice of public health, and each has unique characteristics. See Chapter 2 for more information
about these audiences and their characteristics.
No matter the audience, people generally have certain expectations for receiving scientific data:
They expect to be told why they should believe or do what scientists and other health
practitioners recommend.
They expect to be given the rationale for how these individuals reach their conclusions. Since
people are influenced by pre-existing beliefs and other factors, they may not be convinced to change
their thinking without a sound and logical rationale for doing so.
Finally, audiences expect to know what to do with the information they receive. In other words,
they want to know what action they or others should take.
In communicating with various audiences, you must acknowledge the role of your own values and ethics. Because
many lay audiences inherently trust scientific experts, scientists and other communicators have an important ethical
responsibility to maintain that trust. The selection and presentation of information can have a strong influence
on people and the way they interpret data. The goal is to lead people to conclusions based on sound data that are
well-reasoned and well-presented. To accomplish this, you should avoid emphasizing, minimizing, or ignoring
certain themes that would persuade someone to draw inaccurate conclusions from data.
To succeed in effective communication, scientists and other health practitioners must consider these differences
and present data in a way that audiences will understand. Table 1.2 provides some basic tips for presenting data
in an audience-friendly way. Chapter 4 of this workbook builds on these concepts by providing more practical
tips for presenting data to audiences.
Scientists Lay audiences
Sources and definition
of acceptable evidence
Narrow
Broad
Belief in rational
decision making
Strong Variable
Acceptance of uncertainty
High Low
Level of interest
in scientific topic
High Medium to low
a
Quantitative and
science literacy
High Low
Ability and interest to review
extensive amounts of data
High Low
a
Note: Except for audience members with high levels of involvement for a specific issue.
Source: Making Data Talk: Communicating Public Health Data to the Public, Policy Makers, and the Press by David E. Nelson,
Bradford W. Hesse, and Robert T. Croyle (2009), Table 1.2, p. 14. By permission of Oxford University Press, Inc. (www.oup.com).
4
Table 1.2 Tips for Presenting Audience-Friendly Data
After reading this chapter, you should be able to recognize that effective communication with audiences outside
of the scientific community requires consideration of how those audiences differ from the scientific community
and how communication can be modified to account for those differences. For further detail on concepts
presented in this chapter, refer to Chapter 1, Introduction, of Making Data Talk: Communicating Public Health
Data to the Public, Policy Makers, and the Press.
Tip
Example/Explanation
Avoid terms not frequently used outside
of the scientific community.
Cohort, longitudinal
• Avoid terms with multiple meanings.
Surveillance
Avoid science and math concepts that can
be misunderstood. If these term(s) or concepts
must be used, be sure to explain them in an
easy-to-understand way.
Proportions, relative risk
Focus on the main message instead of detailed
scientific arguments or outcomes.
When making decisions, many people use heuristics
(shortcuts) rather than the rational decision-making
model used by most scientists.
2
• Explain how the data may impact audiences.
Demonstrating impact can help audiences understand
why the data are relevant to them.
Present data in a distinctive way that helps
you gain the attention of your audiences.
For a majority of people in the United States, health issues
are of moderate-to-low interest.
3
Presenting relevant and
interesting information can reduce the likelihood that
people will filter it out due to lack of interest.
5
CHAPTER TWO:
Use Communication Fundamentals
to Your Advantage
All efforts to share information—whether discussing a simple issue or a complex topic—consist of a few basic
communication elements. By understanding these elements and how they work together, you can make
informed choices about your communication approach. After reading this chapter, you will be able to:
Identify and differentiate the four main elements of the basic communication model.
Name three lay audiences key to public health communication.
Recognize how messages can be developed to support a storyline.
Consider the basics
A variety of elements are involved in the basic framework of communication. Although many more complex
models of communication exist, this workbook uses the basic communication model presented in Figure 2.1
as the foundation for discussion.
Figure 2.1 Basic Communication Model
This basic communication model presents four main elements:
1) Messages, or WHAT is used to convey information (e.g., words, symbols, or pictures).
2) Sources (or senders), or WHO SENDS the message (e.g., individuals or organizations).
3) Channels, or HOW messages are sent (e.g., newspapers, conversations, or e-mail).
4) Audiences (or receivers), or WHO RECEIVES the message and interprets it.
Source and
channel
Message
Context
Context
Audience
(receiver)
Source: Making Data Talk: Communicating Public Health Data to the Public, Policy Makers, and the Press by David E. Nelson, Bradford W. Hesse,
and Robert T. Croyle (2009), Figure 2.1, p. 31. By permission of Oxford University Press, Inc. (www.oup.com). See References for additional sources.
5
6
This workbook primarily focuses on helping people who work in public health (the senders) effectively communicate
quantitative data as part of the health messages they send to the general public, policy makers, and the press
(audiences) using various channels.
In order to make the best decisions about the individual elements of the communication process (e.g., messages,
channels, etc.), you should first consider the following:
Purpose (i.e., why the message is being communicated). There are four purposes for communicating
public health information: to increase knowledge, to instruct, to facilitate informed decision-making,
and to persuade. It is important to know which of these applies to the messages you are sending.
Strategy (i.e., the approach for gaining attention). Some communicators use an active strategy,
such as employing a mass media campaign or encouraging word-of-mouth communication. Others
use a passive strategy, such as adding information to a Web site and relying on information-seeking
audiences to find it. The “push-pull” model combines both strategies by sending messages to
audiences (the push: active), while also making information and materials available to interested parties
(the pull: passive).
Context (i.e., factors that may influence receipt and/or interpretation of the message). Contextual
factors—including other sources of information, personal experience, and competing priorities—are
often outside the control of those sending messages. These factors can have influence at various
points during the communication process and can even prevent effective communication.
Determining your purpose, planning a strategy, and considering the context are all crucial steps in the communication
process. In fact, these elements are three of the five fundamental pieces of the “Plan” step in the OPT-In framework
that will be presented in Chapter 5.
Messages
Messages – and the storylines they support – play a critical role in both the basic communication model
presented in this chapter and the OPT-In framework presented in Chapter 5.
The term “storyline” must be defined and explained before messages can be developed and communicated to
audiences. In this case, the term “storyline” refers to the major conclusion(s) that scientists and other health practitioners
want audiences to understand. In other words, the storyline is the science-based bottom line. This differs according to
the type of information the story is based on.
Once storylines are determined, messages must be developed. Messages – chunks of information that support
the storyline – should be based on scientific knowledge and understanding. Each message should be able to
stand alone by communicating a single idea, but, collectively, the messages should provide rationale for the larger
theme (i.e., the storyline).
“Settled science,” or science that has received a clear consensus based on many studies over time, makes
for the strongest storylines since it provides a clear rationale. As a result, messages supporting settled
science storylines can be persuasive or instructive in nature.
Science that has little supporting knowledge and/or no consensus among scientific experts is more
difficult to address. Messages supporting these types of storylines should focus on increasing knowledge
or informing the decision-making process.
7
These concepts are an important part of the OPT-In framework presented in Chapter 5, with storylines being
crucial to the “Organize” step and message development being one of the five elements of the “Plan” step.
Sources
As noted in Table 2.1, sources are differentiated based on the intimacy of contact, with interpersonal sources
involving one-on-one interaction and mediated sources involving one-to-many interactions. Communication often
involves a mix of both interpersonal and mediated sources, such as when health information received from mass
media (e.g., a radio talk show host) becomes part of interpersonal communication (e.g., conversations with friends).
Table 2.1 Types of Sources
Type Description Example
Interpersonal
sources
People who share information
through one-on-one interaction
Family members, friends, colleagues,
health care providers
Mediated
sources
People who share information
through one-on-many interaction
Journalists, politicians
8
Channels
Like sources, channels can also be divided into two main types: interpersonal and mediated (see Table 2.2).
Table 2.2 Types of Channels
Channel selection is a key component of message development and distribution. Research shows that
many health campaigns have failed because only a small percentage of the intended audience was actually
exposed to the message(s).
4
To have a better chance of reaching the intended audience, scientists and
health practitioners should consider the following factors:
Availability, or whether audiences can access certain sources or channels (e.g., television, Internet,
personal health care provider).
Preference, or where and how audiences obtain information, which is closely related to availability.
Credibility, or how believable a source is, based on perceived trustworthiness and expertise.
Audience trends related to these factors change frequently, so you may want to consult the latest research
to understand the current habits and behaviors of your intended audiences.
Audiences
The following lay audience segments are important to public health communication:
General public: individuals within the population at large.
Policy makers: administrators and elected officials with the authority to make decisions
that affect public health.
Press: print, broadcast, or online journalists who obtain or report news.
Table 2.3 provides descriptions and characteristics of each of the three lay audiences.
Type Description Example
Interpersonal
channels
Ways of sharing information that
involve personal contact
Phone conversations, oral presentations,
personal e-mails, doctor visits, text
messages, social media/networking
Mediated
channels
Ways of sharing information that are
more impersonal and typically reach
larger numbers of people at a time
Newspapers, newsletters, Web sites, TV
9
Table 2.3 Comparison of Selected Lay Audiences
Audience segmentation refers to the process of dividing an audience into smaller subgroups based on shared
characteristics (e.g., demographic information, geographic location, habits, and behaviors). Segmentation is
a part of audience analysis—research that helps you better understand the people with whom you wish to
communicate. Audience analysis can aid in planning your communication approach, thus, it is one of the five
fundamental pieces of the “Plan” step in the OPT-In framework.
After reading this chapter, you should have a better understanding of the basic model of communication and its
four elements: messages, sources, channels, and audiences. For further detail on concepts presented in this chapter,
refer to Chapter 2, Communication Fundamentals, of Making Data Talk: Communicating Public Health Data to the
Public, Policy Makers, and the Press.
Source: Making Data Talk: Communicating Public Health Data to the Public, Policy Makers, and the Press by David E. Nelson, Bradford W. Hesse,
and Robert T. Croyle (2009), Table 2.2, p. 49 and Table 2.3, p. 54. By permission of Oxford University Press, Inc. (www.oup.com). See References
for additional sources.
Individual characteristics
Occupational and
institutional factors
Regular sources
of information
General
public
Variable by audience subgroup,
but common factors include:
Level of interest in and involvement
with health issues
Geographic location
Varying levels of education
Socioeconomic status
Health insurance status
Existing health beliefs, social beliefs,
and worldviews
Gender
Age
Various social networks and cultures
Variable by audience
subgroup, but trusted
sources may include:
Healthcare providers
Television news
Internet Web sites
Other people (e.g.,
friends, relatives,
neighbors, co-workers)
Radio/ethnic media
Policy
makers
Ambitious, hard-working, savvy
Attuned to financial implications
Intuitive decision-making is common
Want certainty from experts
Public vs. private systems
Elected vs. appointed individuals
Formal and informal processes
Public policy typically made
by legislators, executives, or
administrators
Interpersonal relationships crucial
Rely on gatekeepers
Busy and subject to multiple
communication efforts and requests
Interpersonal sources
Attend to relevant news
media coverage
Press
Usually have progressive “mainstream”
values and beliefs
Concerned about individual
freedom issues
May be intimidated by scientists or
health professionals
General reporters, specialty reporters,
and editorialists
Business considerations: attuned
to topics of interest to the public
Short deadlines common
Differences between specific news
media (e.g., newspapers, TV)
Certain characteristics make
stories more
newsworthy” (e.g.,
local tie-in)
Prefer personal stories (narratives)
Much competition for news space
Follow news outlet
leaders” (e.g.,
elite papers such as The New
York Times)
Preselected list
of trusted experts
Press
10
When people receive messages, they process and interpret them based on their own literacy level, tendencies,
and biases. As a result, these factors must be considered and addressed when communicating quantitative data
to audiences. After reading this chapter, you will be able to:
Identify audience tendencies that can influence how people receive data.
Describe biases that audiences can have when interpreting data.
Recognize techniques to overcome these tendencies and biases.
Be aware of audience tendencies
People are not always well-prepared to receive and process messages containing quantitative data. Quantitative
literacy (i.e., the skills required to apply mathematical operations) varies from person to person, and even the
most educated audiences may have only a basic or intermediate level of familiarity with mathematical concepts.
Common mistakes people make when interpreting numbers include:
Misunderstanding probability estimates
5
(people may believe that a risk of 1 in 200 is greater than
a risk of 1 in 25).
Misunderstanding percentages.
Improperly converting proportions to percentages.
6
To account for differences in quantitative literacy, health communicators should simplify messages, provide
additional explanation, or modify their approach to increase audience understanding.
In addition to literacy considerations, health communicators should also be aware of general information
processing factors that, although not specific to data or public health topics, can be strongly influential as
people process quantitative data. Here is a list of these tendencies along with explanations and examples.
Cognitive processing limits. Individuals have a limited capacity to process large amounts of information at one
time and simplify or “chunk” the information to which they are exposed.
The 7-digit telephone numbering system was based on research suggesting that people can optimally retain
only 7 (±2) discrete pieces of information at a time.
7
Satisficing. People tend to limit the amount of mental energy they spend obtaining information until they believe
they have “enough” for their purposes.
8
Studies show that visitors will usually leave a Web site within 15 minutes or less if they do not find the
information they need.
9
CHAPTER THREE:
Help Lay Audiences Understand Your Data
11
Expectations of experts and the challenge of uncertainty. Most lay audiences want experts with experience
and credentials to provide definitive, prescriptive information.
10
To use a non-health example, people look to mechanics to definitively diagnose automobile problems
instead of estimating that there is a 30 percent chance that the alternator is the problem — as well as to
recommend specific solutions.
Processing risk information. Many people misunderstand concepts related to risk, such as absolute risk, lifetime risk,
and cumulative risk.
11
Most people do not recognize that repetition of low-risk behavior — such as failing to wear a seat belt with
every car ride — increases a person’s cumulative risk of adverse outcomes during their lifetime.
Framing.
Framing” is presenting data in a way that is consistent with common public frames or models.
Emphasizing the possibility of colon cancer over the minor discomforts of a colonoscopy is an example
of a loss frame.
Associating rewards, such as losing weight and looking fit with exercise, is an example of a gain frame.
Scanning. People often do a quick scan of written or visual material to decide if it interests them, draw conclusions
about what the major points might be, and try to identify the bottom line.
12
When an Internet search for specific information returns hundreds or thousands of potential Web sites,
people scan the first few results before deciding which link to follow.
Use of contextual cues. People tend to look for cues to help them better process and understand information,
especially in cases where the data presented is complex, detailed, or in an unfamiliar format.
13
Regular reports on breast cancer data can be of more use to audiences by highlighting what has
changed since the last report.
Resistance to persuasion. People have a natural resistance to persuasion and often engage in a practice of
defensive processing, an approach that blunts messages that are inconsistent with current behavior.
Smokers may blunt messages emphasizing that smoking is bad since those messages are inconsistent
with the smoker’s own attitude toward tobacco use.
Role of emotion. Emotions have the potential to be a motivating influence on behavior by heightening arousal,
orienting attention, and prompting self-reflection.
14
Communicating that 440,000 Americans will die from smoking in a given year may cause a variety of
emotional reactions based on the readers own relationship or attitude towards smoking.
12
Be aware of audience biases
There are also biases people have when interpreting data, particularly if they are not well-trained in statistical
methods. For instance, people can process incoming information by using heuristic shortcuts, or highly ingrained,
subconscious patterns that run automatically. These shortcuts can lead to systematic error
15
and illogical
reasoning
16
and are summarized in Table 3.1.
Table 3.1 Audience Biases that Influence Quantitative Data Processing
Shortcut Explanation/Example
Representativeness
heuristic
People can sometimes use their implicit knowledge and stereotypes about
an objects category to make judgments about the object itself.
People perceive cancer to be a highly aggressive, lethal disease. As a result, it is
difficult to communicate that cancer is a broad set of diseases, that many types
are slow-growing and easily detectable, and that early diagnosis may not be a
death sentence.”
Anchoring and
adjustment bias
People tend to be “anchored” by the first number they see or have in mind; any
adjustments they make are strongly influenced by that initial value or anchor.
Physicians and patients who initially underestimate the chances of side effects
only adjust their guess slightly (compared to the original number) once they
are told they are incorrect.
Correlation equals
causation
People have a strong tendency to believe that if two types of data are correlated,
then one causes the other.
17
Demographic information may show that as the number of churches in a given
geographic area increases so does crime. Although such a correlation could
suggest that churches cause crime, demographic information shows that population
density—a third variable—accounts for both the increase in churches and in crime.
Failure to consider
randomness
People tend not to consider chance or randomness as explanations for sequences,
events, or occurrences.
When clusters of birth defects occur, public speculation may try to attribute
these clusters to a single cause (i.e., an environmental factor) when the
occurrence may truly happen by chance.
13
Use strategies to overcome tendencies and biases
Health communicators can use a variety of factors about their audiences, from the characteristics discussed in
Chapter 2 of this workbook to the quantitative literacy level, general tendencies, and mental shortcuts discussed
in this chapter. Below are several tips that take these factors into consideration and can improve communication
about public health data across a wide spectrum of groups:
Determine whether data should be presented. Are there sufficient data to support a science-based
storyline? If so, are they appropriate for presentation to intended audiences?
Be brief and concise. Present the “bottom line” and use only a few data points to support it.
Be complete and transparent in portraying statistics. Word choice, as well as the selection or omission
of data, can be highly influential in how audiences receive and interpret data. Avoid implication of a causal link
between variables that are only associated through correlation.
Identify and counter mistaken health-related lay audience beliefs. Use messages that acknowledge the
misconception, diplomatically state why it is inaccurate, and present an alternate explanation.
Use familiar types of data and explain key scientific or mathematical concepts. Choose formats that
will likely be familiar (e.g., frequencies and round numbers) and supplement data that has the potential to be
misunderstood (e.g., concepts of risk) with explanations or additional materials as needed.
Address uncertainty directly. Be honest about the tentative nature of the science, emphasize why scientists
cannot make a definitive explanation, and work to answer questions about what uncertainty means for people.
Ensure usability. Select user-friendly formats (e.g., boxes that highlight key points, upfront summaries of
information) so that audiences can process information more accurately and efficiently.
Provide contextual information. Present individual findings within their larger context, using tools such as
comparison data and short text phrases that state the key findings as appropriate.
After reading this chapter, you should be more familiar with factors that can influence how people receive and
interpret data. For further detail on concepts presented in this chapter, refer to Chapter 3, Overcoming General
Audience Tendencies and Biases to Enhance Lay Understanding of Data, of Making Data Talk: Communicating
Public Health Data to the Public, Policy Makers, and the Press.
14
Practice Exercise
The following five scenarios describe a situation where a communicator uses a specific communication skill or
strategy to overcome an audience tendency or bias. Review the scenarios and select the answer which correctly
identifies the tendency or bias that the communicator sought to overcome.
1) A university research department decides not to release findings from a Phase I clinical trial because of
concern that the promise of a pharmaceutical treatment showing that 80% of participants had complete
resolution of their disease symptoms may create great excitement that will be followed by disappointing
results in Phase II. This decision shows a consideration for which of the following:
a. Resistance to persuasion
b. Anchoring and adjustment bias
c. Failure to consider randomness
d. Satisficing
2) To help explain a new report that conveys the latest statistics related to breast cancer incidence,
communicators develop a graphic that compares this years figures to figures from the previous five years.
This graphic helps address the following:
a. Processing of risk information
b. Role of emotion
c. Use of contextual cues
d. Satisficing
3) A government health agency publishes a press release about a complex genetics research project.
Although many endpoints were involved in the study, the communicator decides to focus only on one
or two data points. This strategy is designed to address which of the following:
a. Information framing effects
b. Cognitive processing limits
c. Use of contextual cues
d. Role of emotion
15
4) During a media interview, a studys lead scientist answers a question related to the brain’s role in the
development of addiction. After the reporter takes notes, the scientist reiterates that a particular brain
area doesn’t cause addiction, but that it plays a role in the development of addiction. This shows the
scientists attempt to overcome which of the following:
a. Information framing effects
b. Processing of risk information
c. Failure to consider randomness
d. Correlation equals causation
5) A doctor conducts an interview to discuss health conditions affecting women. During the interview, the
doctor acknowledges that many women perceive breast cancer to be the primary killer of women. He
provides statistics showing that heart disease kills more women than breast cancer and then reiterates
that women should be just as aware of heart disease as breast cancer. This technique helps overcome
the following:
a. Resistance to persuasion
b. Scanning
c. Failure to consider randomness
d. Anchoring and adjustment bias
Practice Exercise Answers:
1. B (Anchoring and adjustment bias)
2. C (Use of contextual cues)
3. B (Cognitive processing limits)
4. D (Correlation equals causation)
5. A (Resistance to persuasion)
16
As a communicator, think more about what you want your audience to understand and less about what you want
to say. Your task is to use the tools of scientific communication—words, symbols, and numbers—to help people
build knowledge around the issues being communicated. Further, this task has to be accomplished accurately
and ethically.
You have heard the expression, “perception is everything.” In this case it means that your understanding of the
perceptual processes of humans is critical to help appropriately select and effectively use tools for communicating
data. While reading this chapter, keep the following research
18
in mind:
People tend to perceive items that are close to each other in a visual field as being somehow related. You will
need to consider how “proximity” of elements within your data presentation can promote understanding.
Our eyes have a tendency to follow lines and directions implied by separate elements within a visual field.
“Continuation” is another critical factor to consider when designing data presentations. For example, the
continuation of lines (versus bars) in a graph may help better tell your story. Likewise, effective use of
headlines, headings, and sub-headings facilitate a readers understanding of how information is presented
in a document.
People tend to “fill in” information that is not specific in a presentation to help them make sense of the
presentation as a whole. This process of “closure” is effective when the correct details are filled in, but it
can be ineffective and even dangerous when people fill in the wrong information. You can use strategies
to reduce the chance that people will use closure in a potentially harmful way.
In this chapter, you will learn how to capitalize on or overcome these tendencies as you read about several data
presentation formats. The basics of each format – when to use different formats, how to use them effectively, and the
do’s and don’ts of their application – are summarized in this chapter. After reading this chapter, you will be able to:
Evaluate graphical presentations to identify features that help audiences understand data and features
that could be added to enhance a data presentation.
Describe how to effectively use pie charts, bar charts, line graphs, arrays, and visual scales to promote
the understanding of data.
CHAPTER FOUR:
Present Data Effectively
17
Communicate health findings with words by using
different methods
Text labels. Use words to label parts of your graphs, tables, and charts, and make sure the labels are placed
close to the data presented. When possible, use labels next to trend lines or clustered bars instead of further
away in a legend. Use language that is familiar to readers. You do not want to detract from the reader’s ability
to build knowledge or make health-related decisions, so strive to minimize clutter.
Verbal qualifiers. Does your situation lend itself to using everyday terms to describe the relationship between
numbers? If so, it may be suitable to use expressions such as “much higher,” “low risk,” or “most of the time.
19
Keep in mind, however, that your audience may misinterpret the meaning of these phrases. Additionally, individuals
may vary in the way they interpret your messages. One way to reduce the possibility of misinterpretation is to
ground or anchor verbal qualifiers with the actual numbers of interest. For example, “the chances of X are low; only
5% or 5 in 100 people experience it.
Metaphors. Metaphors can help statistics “come to life.
20
Equate numbers or rates to something your audience
can relate to, such as the number of people that can be seated in a sports stadium, the number of children attending
the average elementary school, or the number of people that live in an entire city or town. When writing for
people in a specific locality/geographic area, consider personalizing the data by naming familiar venues, schools,
or communities.
Narratives. Narrative is another tool for bringing data to life. When possible, take your audience to another
place by telling the story with words, visual images, or both. Do you want to educate or persuade? Determine
when it is best to use a short narrative, such as an anecdote, quotation, specific example, vignette, personal story
or testimonial, or case study. Consider using a longer narrative, such as an essay, short story, book, or some type
of script. While there are theoretical reasons for using narratives, the practical reasons are people’s preference
for narratives or stories, the difficulty some have understanding standard data presentation formats, and the way
narratives are processed by the mind.
Tips for communicating findings directly with numbers
Numbers are best used to communicate findings when there is a need to be precise and concise. Numbers can
be used to show various types of values. Research shows that communicators should remember the following
tips and rules when using numbers:
To instruct and inform
Most people have low levels of quantitative literacy. Keep numbers simple in nature, and give
easy-to-understand modifiers to add meaning. Round most decimals to the nearest whole number
(e.g., 9.6 is rounded to 10).
When writing for the Web, use actual numbers (2), versus words (two), even at the beginning of a
sentence. Use numbers to the billions (2,000,000,000), but use a combination of numbers and
words for higher numbers (2 trillion, not two trillion).
When possible, pre-test the use of numbers with your audience to ensure that the numbers are clear.
18
To persuade or motivate
Limit yourself to communicating three or fewer numbers.
Present numbers using familiar metrics, such as the number of people affected, a percentage,
or dollars. When possible, avoid unnecessary precision by using whole numbers, rounding, and
proportions that are easy to understand (e.g., about 1 in 4 people vs. 23%).
Numbers perceived as especially large can be persuasive because they create a sense of vividness,
social pressure, and magnitude of the problem. It is important to consider ethics when using a large
number to persuade or motivate.
In tables
People read data tables to make comparisons and to search for individual numeric values.
21
Give cues and organizational clarity to facilitate movement through a table. Make sure that column
and row headings are clear and easy to understand; and strategically use white space, shading, and
borders to help the eyes know where to go (reading down a column or across a row), or to show that
a group of cells present similar data.
Be consistent in use of places after a decimal point, and present numbered column labels and row
labels in sequence.
Use boldfacing or color to draw attention to significant findings.
The basics of visual symbols and tips for using
them effectively
Pie charts, bar charts, line graphs, icons and icon arrays, visual scales, and data maps can be effective tools for
communicating data, but only when they are appropriately selected and properly used. The following information
and tips are intended to help you choose the right visual for your situation and maximize the visual’s impact
and effectiveness. Check your understanding by reviewing the information presented in Table 4.1 to help you
complete the practice exercises beginning on page 21.
After reading this chapter, you should better understand how to use words, numbers, and visual symbols to present
data more effectively. For further details on concepts presented in this chapter, refer to Chapter 4, Presenting Data,
of Making Data Talk: Communicating Public Health Data to the Public, Policy Makers, and the Press .
19
Table 4.1 Basics of Visual Symbols
Pie Charts
The basics
Show proportions/percentages, especially their comparison, for a total of 100%
Display a “whole” with smaller parts and how they relate to each other
Good for highlighting the largest or smallest piece of something
Do
Make sure the largest slice is pointed at 12 oclock
Display slices clockwise in descending order
Use short labels and position them horizontally and outside the pie
Do not
Show more than six slices
Bar Charts
The basics
Bars represent a group of data with heights/lengths measured using percentages,
dollars, etc.
Axes allow the display of two or more individual numeric values
Good for displaying magnitude or comparative magnitude between
groups of data
Can show relative differences or patterns between/across groups
Horizontal orientations allow text labels to be placed in an easy-to-read position
Vertical orientations are best for showing a comparative rise or fall in counts over
levels of one or more variables
Do
Use six or fewer bars per chart
Use color/shading with strong contrast
Use a bar or line to show a baseline value
Use short and easy-to-understand titles, labels, key messages
Select beginning and ending values and interval widths for axes that represent
patterns in the data without distortion
Do not
Use segmented or stacked bar charts to demonstrate how proportions compare
to the whole
Overlay line representation on top of the bars to indicate variance estimates
or confidence intervals
Line Graphs
The basics
Good for showing:
A connected sequence of data, such as trends over time
Before and after differences
If numbers are going up, down, or remaining stable
Do
Use arrows or text to highlight key events or data
Place labels close to their lines
Include baseline data for comparison purposes
Use short and easy-to-understand titles, labels, key messages
Select beginning and ending values and interval widths for axes that faithfully
and ethically represent patterns in the data without distortion
Do not
Add unnecessary labels or symbols
Use more than four trend lines
20
Icons/Arrays
The basics
Individual graphical elements, such as circles, human figures, etc., are used to
represent quantitative data
Good for showing rankings or ratings in tabular display
Good for displaying probability data representing absolute risk
Do
Use body-shaped figures to represent humans when it seems fitting
Place icons representing numerator values contiguously
Use common denominators between two arrays
Highlight numerator icons
Do not
Randomly place icons representing numerator values unless the sole goal
of the array is to demonstrate randomness
Distort data; make sure to carefully increase the height and width of icons
when showing change in magnitude
Visual Scales
The basics
Use where numbers are ordered and there are equal distances between
intervals; or where numbers are ordered but the intervals between values
may be uneven
Use scales that are familiar, such as thermometers and meters with meaningful
colors and arrows or lines showing a range of values
Use scales to visually represent risk (probability) data, and absolute risk data
and comparisons
Do
Provide anchoring information (lines or arrows) to give contextual cues
and orient the audience to baseline data
Include short titles and key messages
Follow conventional approaches for data presentation (e.g., red to indicate
higher levels of threat in the United States)
Do not
Underestimate the role of emotion and perceived inequity if scales are
used in involuntary exposure situations
Include too much information
Data Maps
The basics
Help illustrate how frequencies are distributed geographically
Support interpretive tasks, such as comparisons
Use colors or shading to show data ranges
Do
Use lines to demarcate discrete entities (geographic borders)
Write clear titles and make labels short and to-the-point but complete
Use callouts to highlight some regions when necessary
Use color to enhance attractiveness and illustrate variation in data
Use a sequential progression of colors from light to dark
Do not
Place red and green side by side
Use more than three to four colors or assume that color schemes displayed
on computer monitors will looks the same in print
Table 4.1 Basics of Visual Symbols continued
21
Practice Exercise
Consider the following visual displays that were found on federal agency Web sites. Demonstrate what you have learned
about the optimal design and use of visual displays by evaluating the samples and answering the associated question.
Question 1: How can this bar chart be modified to make it more effective?
Current Asthma Prevalence Percentages by Age, Sex,
and Race/Ethnicity, United States, 2008
Child 9.4%
Adult 7.3%
Male 7.1%
Female 8.5%
Whit e 7.8%
Black 10.3%
Hispanic 5.8%
12
10
8
6
4
2
0
Age Sex Race/Ethnicity
Current Cigarette Smoking Among Women Age 25 and Older,
by Education Level, 1995-2006*
Question 2: Is there a better way to present the data found in this line graph? Explain your answer.
*Estimates are age-adjusted.
Less
than HS
26.0
23.4
19.6
17.9
7.2
HS Diploma
or GED
Some
College
College Degree
or Higher
Total
40
30
20
10
1995 2000 2002 2004 2006
Percentage of Women
22
Answers:
Question 1: Eliminate the photo from behind the graph; use a horizontal orientation to make labels easier to read;
round percentages to whole numbers; remove space between bars within each grouping.
Question 2: Change positioning of the line labels so the text is horizontal and adjacent to the relative line; change line
colors so the darkest color is on top and the lightest color is on the bottom; if available, remove data for 1995 and add
data for 1994, 1996, and 1998; move labels closer to the corresponding lines in order to eliminate some of the arrows;
and delete the numbers on the graph for 2006.
Question 3: The data map allows the reader to easily observe the similarities and differences in obesity across
the U.S., including the differences by region. Color-wise, however, it would be best to: 1) use a lightest/lowest
prevalence to darkest/highest prevalence scale and 2) use red to indicate states with highest prevalence.
Question 4: Place slices in descending order beginning at 12 o’clock and going clockwise (e.g., lung cancer, then
ischemic heart disease, then chronic obstructive pulmonary disease, etc.); do not stack labels; and use COPD if
audience will know what it means. Also, consider changing title to: Number of Yearly Deaths Caused by Cigarette
Smoking by Disease, 2000-2004.
Other Cancers 35,300
Stroke 15,900
Other Diagnoses
44,000
Chronic Obstructive
Pulmonary Disease
92,900
Ischemic Heart Disease
126,000
Lung Cancer
128,900
ths
oking,
Question 4: How would you modify this pie chart to make it more effective and/or easier to read or use?
Number of Yearly Dea
Caused by Cigarette Sm
2000-2004
Question 3: Why was a map a good visual symbol to use for this data presentation?
20%-24%
15% -19%
25% -29%
> 30%
Percentage of Obese (BMI > 30) Adults (U.S., 2009)
23
Presenting health data to any lay audience is, in essence, a communication task: most people are capable of
increasing their understanding of science and numbers if their involvement levels are high, and if information is
communicated using clear definitions and explanations, appropriate analogies, and readily understandable formats.
Thus far, this workbook has presented a wealth of information and various exercises to help communicators
understand the many aspects of and influences on communication. This chapter, as the title suggests, will help
communicators “put it all together” when faced with the task of communicating public health messages that may
include the presentation of data. After reading this most practical of all chapters in the workbook — and referring
to previous chapters, as needed — communicators will be able to:
Apply the four components of a framework designed to serve as a guide for planning and
implementing a public health communication task.
Before commencing a communication task that may include the presentation of data, you should first recall that
data can be used for several purposes. As discussed in Chapter 2, the four purposes of communicating public health
information, including data, to lay audiences are: 1) increasing knowledge, 2) instructing, 3) facilitating informed
decision-making, and 4) persuading. Also important to consider are the roles of data in communication, which are
slightly different from purposes. These roles, along with explanations and examples, are shown in Table 5.1.
CHAPTER FIVE:
Use the OPT-In Framework
to Make Your Data Talk
24
Table 5.1 Roles of Data in Communication
OPT-In: Organize, Plan, Test, Integrate
The authors of Making Data Talk: Communicating Public Health Data to the Public, Policy Makers, and the
Press have developed a framework to help communicators plan and execute their data-related communications.
The framework employs a mnemonic (or memory) device – OPT-In – which stands for Organize, Plan, Test, and
Integrate. A brief overview is provided on the next page and the exercise at the end of this chapter is designed
to help you understand and internalize the frameworks application.
Role Explanation/Example
Raise awareness
Used to communicate that a problem exists, why it exists, how many are affected,
and how it can be addressed.
Data can be simple descriptive statistics, such as X people are affected by Y disease;
or X people have diabetes, a major risk factor for chronic kidney disease.
Reduce level
of concern
Used to help people gain perspective about what does and does not constitute
a substantial level of health risk.
May be used in clinical settings to help people understand the impact of certain behaviors
or exposures or the benefits of a certain treatment.
Explain
(cause and effect)
Used to show or refute association or cause-and-effect relationships and their magnitude
or provide a basis as to why certain conclusions were reached.
Causal data, for example, can be used to support a storyline that provides hope:
X percentage of people who are treated with Y never experience disease symptoms.
Provide contextual
information
Used to improve understanding of a public health issue, usually with some type of
comparison to an overall population value.
May be used to demonstrate how the prevalence of a condition has or has not changed over
time or how one state is impacted by an exposure compared to how another state is impacted.
Predict
Used to communicate projected or expected effects of a policy or program or the
ending of one.
Data may be used to estimate how many people are expected to be positively or negatively
impacted by a change.
Evaluate
Used to communicate observed impacts of a policy or program or of their discontinuation.
Data may be used to show how many people were impacted by X program.
Maintain
awareness
Used to remind people of something they already know.
Data may be used to point out how many lives are saved each year by using seat belts or how
many viral transmissions are prevented due to the simple act of hand washing.
Source: Making Data Talk: Communicating Public Health Data to the Public, Policy Makers, and the Press by David E. Nelson, Bradford W.
Hesse, and Robert T. Croyle (2009), Table 5.1, p. 180. By permission of Oxford University Press, Inc. (www.oup.com). See References for
additional sources.
25
Organize. During this crucial first step of the framework, communicators must develop a clear understanding
of the scientific knowledge and the level of consensus among scientists. If the state of the science is unknown,
a formal review of the literature will be needed. Otherwise, a review and synthesis of the consensus among
scientists will be adequate. The science will then be used to develop the storyline, which is essentially the major
conclusion about the science. It is critical to ensure that the storyline communicates exactly what is intended
(about colonoscopy, the HPV vaccine, etc.) without causing confusion or limiting the potential impact of the
message—which speaks to the need for testing (see below).
While organizing, the communicator will also determine whether or not data will be included in message
development. If data are included, the communicator must take steps to ensure their relevance and clarity.
Revisit Chapter 2 of this workbook to review information on storylines and message development.
Plan. The second step focuses on ensuring that the storyline is accurate and strategically presented to audiences.
Your plan may be brief or long, depending on the situation. The five planning components covered in Chapters
2 and 3 of this workbook are the focus of the “Plan” step of this chapters exercise and include:
1) Determining the purpose for communication.
2) Analyzing the audience(s).
3) Considering the context in which communication will occur.
4) Developing a preliminary message (which may or may not include data).
5) Planning a strategy to reach audiences.
Test. The third step of the framework encourages message and usability pre-testing. Extensive testing often is
not possible, but even some formative and/or usability testing may mean the difference between succeeding and
failing at your communication task.
Formative testing involves getting feedback from people who are part of your target audience while
you are developing messages and materials and selecting communication channels before actually
starting your communication activities. Examples of testing strategies include conducting interviews or
focus groups, implementing surveys, and collecting feedback cards to determine audience preferences
and understanding of messages.
Usability testing is conducted to ensure a communication products ability to support the audience
member’s task. Testing involves observing anticipated “users” while they try out a decision aid, Web site,
or application to identify problems that can be corrected before actual implementation.
Integrate. The fourth and final step focuses on integrating communication efforts and integrating messages
within a broader context of current scientific understanding. Communicators must coordinate efforts within and
across communication channels for a defined communication effort. It is critical to portray scientific findings and
conclusions with accuracy and clarity and in a way that makes them usable and useful to audience members. The
Integrate section of this chapters practical exercise will help you think through this step.
26
Some other things to consider
Data should be used sparingly to limit cognitive burden and presented in formats that are familiar
to the audience (e.g., pie charts).
Framing messages as gains/benefits or losses/negative effects can be highly influential. For primary
prevention, emphasize the positive effect of the behavior; for secondary prevention (e.g., screening),
emphasize the negative consequence of failing to be screened.
The order or sequence of data will impact how information is remembered. For example, the first
and last numbers presented are most likely to be remembered.
22
Identify and make numbers ‘stand out’ by showing how they are unique or novel. Doing so
will help demand attention and can promote newsworthiness.
Integrate words, numbers, and symbols.
After reading this chapter, you should have a general understanding that applying the OPT-In framework
to a communication task can result in presentations that promote audience members’ understanding of
data. For further detail on concepts presented in this chapter, refer to Chapter 5, Putting it All Together:
Communicating Data for Public Health Impact, of Making Data Talk: Communicating Public Health Data to the
Public, Policy Makers, and the Press.
Practice Exercise
The National Cancer Institute administers the Health
Information National Trends Survey (HINTS), which is
a biennal, cross-sectional survey of a nationally-representative
sample of American adults that is used to assess the impact
of the health information environment. Specifically, HINTS
measures how people access and use health information,
how people use information technology to manage health
and health information, and the degree to which people
are engaged in healthy behaviors.
Use the following exercise as an opportunity to apply the
OPT-In framework to a real-world communications task.
A portion of a HINTS brief, which provides a snapshot
of noteworthy, data-driven research findings, is provided
here. This brief explores factors associated with accurate
knowledge about lung cancer and the negative effects of
tobacco use through the analysis of HINTS survey data.
Read the results outlined in the brief. You want to
communicate the results to the regional health director
to support development of an educational campaign but
are unsure about your messaging, your presentation, and how you will integrate your messages
in a broader context. Use the questions on the next page to help you prepare to communicate
your data. Read the entire brief by visiting: http://hints.cancer.gov/brief_11.aspx.
27
STEP: Organize
1) What does the science tell us?
2) What is the level of consensus for the findings?
3) What are your possible storylines?
4) Will it be helpful to use data to communicate your message/storyline? If yes, why?
5) What role are the data playing?
6) Why were the data collected?
7) What are the limitations of the data?
Remember:
Be sure to fully review/synthesize the state of scientific knowledge and consensus.
Tie data back to broader context of existing scientific knowledge.
Assess scope and resources needed to support the planned communication effort.
STEP: Plan
1) Why are you communicating findings?
2) What is known about your audience?
3) What is the current communication context?
4) What are your preliminary functional messages?
5) What strategy will you use?
STEP: Test
1) How will you identify and recruit potential candidates to informally and formally test messages,
materials, and channels?
2) Exactly how will you test your messages?
STEP: Integrate
1) How will you synchronize your messaging across communication channels and over time?
2) What other resources will you provide to your audiences?
3) What will you do to help your audience understand the data within a broader context?
4) How will you make clear what the audience can or should do with the data?
Additional questions
1) Which audience characteristics will work to your advantage?
High level of involvement
Low level of emotion
High level of education
High mathematical, science, and document literacy
Rational orientation
Agreement with the position advocated
2) What role(s) are the data playing in your messages?
Raising awareness
Reducing level of concern
Explaining cause and effect
Providing contextual information
Predicting
Evaluating
Maintaining awareness
28
Acute public health situations are diverse in type, as well as the response and emotions they can cause. An infectious
disease outbreak, for example, has the ability to cause fear, if not panic; floods can displace people and affect
their economic livelihood; and the content of newly released screening guidelines may challenge widely held
beliefs and even elicit anger. Acute public health situations are similar, however, with regard to how we should
approach communications about them. Outlined below are the defining characteristics and communication
requirements of acute public health situations. This information is followed by an exercise that requires you to
examine how well an acute public health event was communicated to the public.
After reading this chapter, you will be able to:
Identify the distinguishing characteristics of acute public health situations.
Evaluate an article (or other communication product) about an acute public health situation to identify
how it may or may not be modified to effectively communicate data to the intended audience.
Defining acute public health situations
Acute public health situations include infectious disease outbreaks, natural disasters, explosions or fires, possible adverse
effects from a drug or medical device, possible disease clusters, intentional adverse health events, actual or perceived
adverse effects of immunizations, psychological events, and unexpected (study) findings or influential reports. These
and other acute public health situations can be characterized by one or more distinguishing characteristics:
1) A discrete event or unexpected, unplanned, or extraordinary discovery.
2) Actual or perceived serious or widespread health problem, or a new understanding or recommendation
about a health issue that will likely affect many.
3) Potential to cause fear, anxiety, anger, or other emotions.
4) Likely to receive news media attention.
5) An expectation that public health professionals will quickly identify and resolve the problem.
Various factors increase the chance that an event will become an acute public health situation and can strongly
influence communication. Those factors include:
Dreaded disease, condition, or catastrophic potential
Irreversibility of effects
Identifiable victims
CHAPTER SIX:
Show What You Know: Communicating Data
in Acute Public Health Situations
Large magnitude (number of people affected)
Children involved or at risk
Uncontrollability
29
Check for understanding: The March 2011 earthquake in Japan and its aftermath (e.g., a damaged
nuclear reactor) is an example of an acute public health event. Review the list again to identify how many
of these factors helped define the disaster in Japan as an acute public health event.
Communication process
Responses to acute public health situations are known by several names — crisis, risk, emergency, and disaster
communications — and require swift but well-conceived message development and execution. Communicators
must consider the following when communicating in such situations:
Communication phases and objectives. When faced with the prospect of communicating about acute
public health events, it can be helpful to take a phased approach, such as one that has been effectively applied
to many crisis situations. Approach the communication task as steps that can be taken before, during, and after
the acute public health situation (crisis). See Table 6.1 for the steps or objectives to be executed during each
phase. Consider using this approach in conjunction with the OPT-In framework.
Table 6.1 Acute Public Health Situations: Communication Phases and Objectives
Phase Objectives
Pre-Crisis
a
1. Be prepared
2. Foster alliances
3. Develop consensus recommendations
4. Test messages
Crisis
(Initial)
1. Acknowledge event and uncertainty
2. Explain and inform audiences, in simple terms, about risk(s)
3. Establish organizational/spokesperson credibility
4. Provide emergency courses of action (i.e., how and where to get more information)
5. Commit to providing stakeholders and public with continued communication
Crisis
(Maintenance)
1. Help people more accurately understand their own risks
2. Provide background and encompassing information to those who need it (e.g., how it happened,
whether it has happened before, how to prevent it in the future, will recovery occur, will there
be long-term effects)
3. Gain understanding and support for response and recovery plans
4. Listen to stakeholder and audience feedback and correct misinformation
5. Explain emergency recommendations
6. Empower risk/benefit decision-making
Post-Crisis
(Resolution and
evaluation)
1. Evaluate communication plan performance
2. Document lessons learned
3. Determine specific actions to improve crisis systems or the crisis plan
4. Consider ways to better educate the public response in the event of future similar emergencies
5. Honestly examine problems and mishaps and then reinforce what worked in the recovery
and response efforts
6. Encourage support for policies or resource allocation to promote effective responses to future
acute situations
7. Promote activities and capabilities of the organization
a
Note. “Crisis” and “event” are often used interchangeably to describe communication phases.
Source: Making Data Talk: Communicating Public Health Data to the Public, Policy Makers, and the Press by David E. Nelson, Bradford W. Hesse,
and Robert T. Croyle (2009), Table 6.3, p. 227. By permission of Oxford University Press, Inc. (www.oup.com). See References for additional sources.
30
Questions to guide communication. Those responsible for communicating about acute public health situations
will need to tailor messages for the public/lay audiences, the media, health professionals, and various other groups.
Experts have developed a list of questions (see Table 6.2) that the public may have during acute public health
situations. Communicators can use them to guide the development of messages.
Table 6.2 Questions Lay Audiences May Have in Acute Public Health Situations
Some other things to consider
The following message content and delivery guidelines should also be considered in acute public health situations:
Provide accurate information about the situation, decisions being made, and actions being taken.
Use simple and nontechnical language.
Use consistent messages.
Provide messages quickly and regularly.
Demonstrate empathy, caring, honesty, openness, commitment, and dedication.
Acknowledge the uncertainty of the situation and audience fears or concerns.
Correct misinformation quickly.
Do not be overly reassuring.
1. What is the problem and how serious is it (what is happening)?
2. Are my family and I (or community members, friends) safe?
3. Is there a chance that I, or those who matter to me, could be affected?
4. What should I (or others) do to protect myself (themselves)?
5. Who or what caused this problem (how or why did this happen)?
6. What does this information mean (interpretation)?
7. What can we expect will happen?
8. Can the problem be fixed?
9. What is being done to address the problem and why?
10. How are those who are affected getting help?
11. Is the problem being contained (e.g., is the intervention or action working)?
12. When did you begin working on this problem (when were you notified about it, when did you
determine that there might be a problem)?
13. Did you have any forewarning that this might happen?
14. Why wasn’t this prevented from happening?
15. What else can go wrong (“worst-case” or “what-if” scenarios)?
16. Who is in charge?
17. What is not yet known?
18. What bad (or good) things aren’t you telling us?
19. Who can I turn to, or where can I go, to get more information?
20. When will you be providing us with more information?
21. How much will it cost to fix this problem?
a
22. Who is or will be responsible for paying to fix this problem or compensate those affected for their losses?
a
a
Note: Primarily from policy makers.
Source: Making Data Talk: Communicating Public Health Data to the Public, Policy Makers, and the Press by David E. Nelson, Bradford W. Hesse,
and Robert T. Croyle (2009), Table 6.4, p. 228. By permission of Oxford University Press, Inc. (www.oup.com). See References for additional sources.
31
Controversy Potential
Acute public health situations can be categorized based upon their potential for controversy—a factor that will
influence communication decisions. The following factors distinguish lower- and higher-controversy situations
from one another.
Potential lower-controversy situations
Include localized infectious disease outbreaks, natural disasters, or acute chemical exposures. Specific
individuals and organizations are often identified as responsible for the situation.
Usually have a well-defined and identifiable health outcome for which a strong scientific consensus
exists. The outcome is occurring at a higher rate than expected and has an identifiable cause with
a plausible and strong cause-and-effect relationship. The exposure, outcome, and cause-and-effect
relationship are recognized in a relatively short period of time.
Public health interventions or measures, if employed, fall within the acceptable normative beliefs
of the public and policy makers.
Communicating about lower controversy situations may require no or minimal communication
involving data. Rather, recommendations for protecting ones health may be more appropriate
in lower-controversy situations.
Potential higher-controversy situations
Include extended outbreaks, scientific consensus at odds with an audiences strongly-held beliefs, or
higher levels of scientific uncertainty with or without adequate or widely accepted resolutions. Table 6.3
identifies how and why higher-controversy potential situations result and the related communication
implications and insights.
Table 6.3 Higher-Controversy Situations:
Characteristics and Communication Implications
In general, potential higher-controversy situations may generate intense lay audience interest, which may
make audience members more motivated to understand data and require relatively more extensive data
communication efforts.
Common causes of higher-controversy situations Communication implications
Definitive cause of an infectious disease, for example, was not
identified early. Controversy increases as health effects become
more serious, the number of people or geographical area grows,
and the situation endures.
Journalists often seek details about scientific methods
and analytic approaches to support the “mystery
theyre reporting.
A scientific consensus’s explanations, conclusions, or
recommendations are unacceptable to various audiences.
This is common for environmental issues, product exposures,
and scientific bombshells.
Communications are difficult because messages
may contradict previous consensus recommendations
from experts. Messages also may challenge strongly
held beliefs.
Adequate or widely acceptable resolutions cannot be achieved
due to a high level of scientific uncertainty. This is common for
environmental, occupational, or product safety or consumer
protection issues.
Communicators must address anxiety and fear among
audiences. Some situations may require extensive and
long-term communication efforts (for months to years).
32
Data selection and presentation. The OPT-In framework, discussed earlier in this workbook and more extensively
in Making Data Talk: Communicating Public Health Data to the Public, Policy Makers, and the Press, can be used for
acute public health situations. Specifically, selection of data will be based on whether or not data are needed to support
the storyline, the purpose of the communication, and analysis of the audience. Once again, anticipating or learning
questions that audiences may have can be used to guide communication. Audiences may want to know what is
happening, how and/or why it is happening, what it means, what is being done about it and why, and whether or not
the action is working. These audience concerns can help determine which types of data measures to use.
Data presentation modalities in acute situations can range from verbally providing one or two numbers to using
more complex icon displays of absolute risk data. Remember that Chapter 4 of this workbook can be used to
identify data presentations that may be most ideal.
After reading this chapter, you should have a general understanding about the communication implications
for acute public health situations. For further detail on concepts presented in this chapter, refer to Chapter 6,
Communicating Data in Acute Public Health Situations, of Making Data Talk: Communicating Public Health Data
to the Public, Policy Makers, and the Press.
33
Practice Exercise
Below you will find a mock news article. Has the author effectively covered the acute public health event using
the key concepts outlined in this chapter? Use the questions below to help guide your decision.
Alfalfa Sprouts May Be Cause of Salmonella Outbreaks
May 15, 2009—Alfalfa sprouts produced at several facilities using seeds from a common grower is the likely
source of the salmonella outbreak that has sickened at least 228 individuals across 13 states earlier this year.
Health officials determined that almost half of the salmonella cases were linked to restaurants and retail outlets
that had received alfalfa sprouts from a
specific producer-distributor. Those affected
ranged in age from less than 1 year old to
85 years old. Over two-thirds (69%) were
female. No deaths were reported, however,
4% of people reported being hospitalized.
In April, the Food and Drug Administration
and the Centers for Disease Control and
Prevention (CDC) recommended that
consumers not eat raw alfalfa sprouts,
including sprout blends containing alfalfa
sprouts, until further notice. Symptoms
from salmonella poisoning include diarrhea,
fever, and abdominal cramps. According to
the CDC, there are an estimated 1.4 million
cases of salmonella poisoning each year.
1) What criteria help define a public health problem as acute, and which message content and delivery
essentials were met?
2) What is the article’s storyline? Why is it effective or ineffective? If you think its ineffective, what storyline
would you have written?
3) For what purpose was the article written (to increase awareness or knowledge, instruct, facilitate
informed decision-making, or persuade)?
4) Describe the audience(s) for whom the author wrote the article. Think in terms of their levels of
involvement, emotion, and education; mathematical, science, and document literacy; rational orientation;
and level of agreement when a persuasive argument is presented.
5) What data measures (if any) were used by the author?
6) Describe the data’s presentation and level of effectiveness and how you would have used or presented
data similarly or differently. Include your assessment of whether or not the format was consistent with
recommendations for potential lower- or higher-controversy situations.
7) What audience concerns or questions were addressed by the authors use of data?
Source: Centers for Disease Control and Prevention. Outbreak of Salmonella Serotype Saintpaul Infections Associated with Eating
Alfalfa Sprouts—United States, 2009. MMWR 2009; 58(18):500-503. Accessed from the World Wide Web on July 8, 2011
(www.cdc.gov/mmwr/pdf/wk/mm5818.pdf). Centers for Disease Control and Prevention. Technical information: Salmonella.
Accessed from the World Wide Web on July 8, 2011 (www.cdc.gov/salmonella/general/technical.html).
Number of salmonella cases associated with eating alfalfa sprouts, by state (as of May 1, 2009)
34
CHAPTER SEVEN:
Show What You Know: Communicating Data in
Health Policy or Program Advocacy Situations
Public health is often influenced by efforts of individuals (advocates) and organizations that either support or oppose
specific policies or programs that affect the public’s health. Advocacy activities can be short- or long-term and may
involve laws, regulations, or resources allocation. Advocacy distinguishes itself from other public health situations in two
ways: 1) persuasion is the primary purpose for communicating information, including data, and 2) policy makers are
usually the primary audience, with the press and public being secondary.
This chapter provides a brief overview of the policy development process, the advocacy communication process,
and considerations for using data in advocacy situations. This information is followed by an opportunity to apply
what you learn.
After reading this chapter, you will be able to:
Describe the steps in the public policy cycle and the advocacy communication process.
Prepare to communicate support for a new local law that will impact public health.
To understand the communication process in advocacy situations, one must first understand the public policy cycle,
which includes four interdependent phases. During the problem identification phase, policy makers recognize that
a particular problem or issue must be addressed. Policy makers then shift into the policy formulation phase, where
they consider potential options and decisions about how to address the problem. Next is the policy implementation
phase, where those responsible for carrying out the policy interpret and make decisions about the policy. Once
enacted, the policy enters the policy evaluation phase, where a formal or informal assessment of the policy is carried
out. The four phases are shown below in Figure 7.1, along with examples of what may take place during each phase
if a community were to address local obesity rates.
35
Figure 7.1 Public Policy Cycle
Feedback /
maintenance
Policy
evaluation
Policy
formulation
Policy
implementation
Problem
identification
(issue definition)
Obesity is on the rise in Anytown, USA
A diet high in calories and/or fat appears to be an important
factor in obesity, along with a sedentary lifestyle
Local government officials receive and discuss feedback from
community members on an ongoing basis
The health department tracks impact on obesity rates over time
Merchants and citizens have an opportunity to advocate for
and oppose enactment of a law requiring restaurants to post
calorie information on their menus
Elected officials vote to enact the law
City leaders inform restaurant owners of the new laws
requirements/timing
Restaurants comply with the law and are spot-checked
by local officials
Communication process in advocacy situations
Effective advocacy requires attention to the communication process. Steps include the following:
Conduct research to learn about policy makers (and their gatekeepers), as well as their
information sources and preferences. Use Web sites of elected representatives, and talk with their
staff members.
Understand formal and informal communication processes. These include processes for
presenting at committee hearings (formal), and how policy makers’ gatekeepers can make decisions
that promote or derail your efforts (informal).
Consider timing. Use common sense to guide decisions about when to communicate or not to
communicate with policy makers. Capitalize on the use of focusing events (e.g., legislative hearings),
and avoid communicating with policy makers when they are distracted by other events.
Coordinate with allies. Work with like-minded individuals or organizations to collaboratively
communicate your message to, and with, advocacy organizations.
Select best sources for information and message delivery. Peoples opinions are often based
on their perception of the source, so individuals or organizations who deliver messages must be
considered trustworthy and not self-serving.
Gain media attention. Policy makers will attend to issues, policies, and programs that are getting
media attention.
Follow up. Provide needed or requested information, and express appreciation for the individuals time
and consideration.
Source: Making Data Talk: Communicating Public Health Data to the Public, Policy Makers, and the Press by David E. Nelson, Bradford W. Hesse, and
Robert T. Croyle (2009), Figure 7.1, p. 268. By permission of Oxford University Press, Inc. (www.oup.com). See References for additional sources.
36
Message delivery in advocacy situations
Similar to other situations, advocacy-related communication requires attention to message delivery. When possible:
Be brief and quickly get to the main point.
Be definitive and avoid technical jargon.
Use real-world examples and localize data and narratives.
Anticipate opposition arguments, be prepared with responses, and provide short handouts with key
points and contact information.
Scientific data and advocacy
While scientific data are not the only factor that can impact policy makers, data can indeed be used by scientists to
effectively influence and persuade policy makers and the public. Refer again to the OPT-In framework, presented
in Chapter 5, which is useful for planning and implementing communications in advocacy situations. During the
planning process, determine whether or not the presentation of data will support identified themes and messages.
Previous chapters in this workbook outlined how data can serve various roles, depending on the situation and the
communicators needs. In policy advocacy, public health data can be used to:
Raise awareness. Surveillance or trend data can be used to define a problem or issue, to
demonstrate that a problem exists, that it is important or serious, and/or that it impacts a large
number of people. Gloom (negative message framing) is a theme often used to raise awareness,
particularly when communicators want to shame policy makers into action.
Show cause and effect. Data that are typically derived from research are used to show that
situations previously thought to be inevitable or random can now be controlled in some way
(e.g., through a new program, policy, screening, diet). Control and hope (positive message framing) is
a theme that can be used for cause and effect communications.
Support a prediction. Similar to cause and effect, data can be used to communicate the expected
positive impact of a changed or new program or policy, particularly when the program’s or policy’s
magnitude will be large. The control and hope theme, therefore, also is useful to support predictions.
Evaluate. Evaluation and other types of data can be used to communicate the success or failure of
a program or policy. The success theme (positive message framing) is used when positive trends and
changes result from a particular program or policy.
Maintain awareness. Use “tried and true” data items for the given situation. When possible, however,
provide new data or reformulate existing data. An established public health issue or intervention can
be refreshed on important anniversaries or when new relevant reports or studies are published.
37
Data presentation
As with any public health situation, data – if selected for use – must support the storyline while being presented
accurately and without misleading audiences. The latter may be especially problematic, however, for advocacy
situations because they require the communicator to be persuasive. The nature of advocacy situations also
requires data to be described and interpreted clearly. Data presentation formats considered to be most effective
for advocacy situations include the following:
Stating or reporting only one or two numbers. When possible, use rounded numbers,
and choose numbers that testing has identified as easy-to-understand and meaningful.
Verbal qualifiers, such as “small decreases” or “great risk,” as they help contextualize the data.
Metaphors, which can help gain audience attention and improve comprehension, especially when
the data are related to something the audience knows, such as the size of a local school. Auditory
(spoken) metaphors are best.
Narratives, which can influence emotions, but only when they can be integrated easily and support
advocacy themes.
Visual presentations, which can be readily used to demonstrate magnitude, highlight changes,
and make comparisons for the goals of enhancing understanding and interpretation by the audience.
Specifically:
Pie charts are good for demonstrating magnitude by showing how small or large something is in
relation to the total.
Bar charts also are good for demonstrating magnitude and comparative changes over time.
Line graphs can help show cause and effect and can easily be used to show increases, decreases,
or how things are remaining the same.
Maps can be used to show geographic areas that are at highest risk for experiencing an adverse
health outcome (or already experiencing one).
After reading this chapter, you should have a general understanding about the public policy cycle and how to
effectively communicate data in health policy or program advocacy situations. For further detail on concepts presented
in this chapter, refer to Chapter 7, Communicating Data for Policy or Program Advocacy, of Making Data Talk:
Communicating Public Health Data to the Public, Policy Makers, and the Press.
38
Practice Exercise
In November, 2009 the Howard County Board of Health in Maryland (“the Board”) voted unanimously to ban
individuals under the age of 18 from using indoor tanning devices—the first jurisdiction in the United States to do
so. The vote took place after a large public hearing, where noted dermatologists, county leaders, and members of
the public, including a former Miss Maryland who developed skin cancer at a young age, testified before the Board.
Testimony was presented both in support of and in opposition to the proposed regulations. Proponents came out on top
by building a strong case for the dangers of skin cancer and indoor tanning beds based on the following data and facts:
Is skin cancer common?
Skin cancer is the most common of all types of cancer and accounts for almost half of all cancers in the U.S.
In 2009, the American Cancer Society predicted that there would be more than 11,000 deaths from skin cancer.
Melanoma – the more serious and aggressive type of skin cancer – is on the rise in the U.S. and in
Maryland. The rate of new melanoma cases in the state is 18 per every 100,000 people.
Howard Countys incidence rate is similar to the state of Maryland, at 21 per every 100,000 people.
What are the health risks of tanning beds?
The International Agency for Research on Cancer (IARC) has classified tanning beds as cancer causing agents.
Using a tanning bed before age 35 increases your risk of developing skin cancer by 75%.
Exposure to UV radiation during indoor tanning increases the risk of melanoma and non-melanoma
skin cancers, especially when a user is exposed at an early age.
The World Health Organization recommends restricting the use of tanning beds by anyone under the
age of 18.
Who uses tanning beds?
On an average day, more than 1 million Americans tan in tanning salons.
The majority of tanning bed users (70%) are young women between 16 and 29 years of age.
Close to 40% of teenage girls report having used a tanning bed within the past 12 months.
What types of laws have states passed on indoor tanning and are these laws effective?
At least 29 states and four counties regulate the use of tanning beds by minors.
The majority of regulations require parental consent for the teen to use a tanning bed.
Source: Howard County Seeks to Ban Indoor Tanning for Youth Under Age 18: Press Packet. Press Conference September 22, 2009.
Howard County Health Department, Howard County, MD.
The fact sheets included in the press packet were developed based on information obtained from the American Cancer Society
(www.cancer.org), the American Academy of Dermatology (www.aad.org), the World Health Organization (www.who.int/en/),
and the National Conference of State Legislatures (www.ncsl.org).
Imagine that you represent a community health organization in Howard County and have
been asked to testify in front of the Board in favor of the new indoor tanning regulations.
Give a brief synopsis of the situation.
What data would you use to raise awareness, show cause and effect, predict, evaluate, or maintain
awareness for advocacy efforts?
What theme(s) would you use to present your argument?
Which data (if any) would you choose to display visually? What format would you use?
39
CONCLUSION
Summary
Communicating health data is a vital component of the process of disseminating scientific findings to lay audiences.
As we better understand the role of data in communication, the challenge becomes how to select and present data
in ways that lay audiences can understand and use. This workbook presented an overview of the key findings
and recommendations on how to better select and present data to lay audiences—the public, press, and policy
makers. As noted previously, effective communication starts with having a clear story-line, a communication
purpose, and a strong understanding of your audience. Knowing the characteristics of the audience, the factors that
influence communication about health, and audiences’ expectations for receiving data, are critical to knowing how
to communicate data. Having an understanding of audience tendencies and biases is important as those factors
influence how and when to interpret data. Audience research will help you decide to what extent, if any, data should
be used to convey the message with your specific audience.
Defining the communication requirements for specific situations, such as unexpected events or policy planning, and
understanding the context or circumstances surrounding the issue is essential, as this will influence how the data are
presented. These contextual factors will help guide the approach for communicating the data (e.g., to educate or to
persuade) and will help determine the selection of data elements to present to your audience. When presenting
data in a visual format, features such as graphs, charts, and maps can be added to enhance a data presentation.
Conversely, there are ways of communicating data without using numbers or graphics. Knowing the benefits and
limitations of each approach and when to use such visualization or narrative techniques depends not only on the
type of data that are available, but also on your audience and your purpose for communicating the data.
Future trends and challenges
Access to more health data, especially at the community level, has its benefits. It can enable communities to identify
and observe what is currently occurring with respect to health indicators, and empowers them to advocate for
improvements. Further, additional data can satisfy those who need more information to make key decisions or
conclusions, such as local policy makers.
However, challenges arise about how all of these data are synthesized and interpreted. With the quantity of health
data becoming more widely available, the presentation quality of these data becomes even more important. The
variety of forms in which data are available today can be misused, misinterpreted, or poorly understood. Moreover,
questions may arise about how much data are needed to convey a message, or when too much or too little data
are being used, given the large amount of health data that are available for some health issues.
40
Innovations in computer and other technological interfaces reflect the new wave of opportunities for data to
impact health. Patient health data in electronic medical records can prompt clinicians to recommend screenings,
support decision-making on treatment, and monitor adherence to treatment protocols. At the population level, data
from health systems, coupled with other surveillance systems, can uncover health disparities and further prompt
action toward achieving health equity. With these innovations in health information technology, communicating
data effectively that will enable lay audiences to understand and be empowered may be the biggest challenge
confronting researchers and practitioners.
Closing
Communicating health data to lay audiences is a complex process, especially when taking into account the context
and other considerations associated with the data, health topic, or environment. You must carefully consider all of
these factors before deciding whether data should be used in key messages, what data to communicate, and how to
present selected data effectively. For public health professionals, it is always helpful to have an approach like the OPT-In
framework that helps guide the planning and implementation of communication tasks. This framework can be readily
used to communicate data and other health information across settings and in a variety of different situations. We
hope this framework, along with the content and the practical exercises, helps promote your understanding of the
concepts outlined in this workbook and can increase your ability to successfully apply them in your work.
References
Introduction
1
Nelson DE, Hesse BW, Croyle RT. Making Data Talk: Communicating Public Health Data to the Public, Policy
Makers, and the Press. New York, NY: Oxford University Press; 2009.
Chapter 1
2
Kahneman D, Slovic P, Tversky A, ed. Judgment under Uncertainty: Heuristics and Biases. Cambridge, UK:
Cambridge University Press; 1982.
Slovic P. The Perception of Risk. London; Sterling, VA: Earthscan; 2000.
3
Miller JD, Kimmel LG. Biomedical Communications: Purposes, Methods, and Strategies. San Diego, CA:
Academic Press; 2001.
Chapter 2
4
Hornik RC, ed. Public Health Communication: Evidence for Behavior Change. Mahwah, NJ: L. Erlbaum
Associates; 2002.
Additional sources for Figure 2.1:
Littlejohn SW, Foss KA. Theories of Human Communication. 9th ed. Belmont, CA: Wadsworth; 2007.
McQuail D. McQuail’s Mass Communication Theory. 5th ed. London, UK: Sage; 2005.
Additional sources for Table 2.3:
Arceneaux K. The “gender gap” in state legislative representation: New data to tackle an old question.
Polit Res Q. 2001;54:143–160.
41
Armor S. More women at the top. USA Today. June 25, 2003. Sect. 3.
Bacharach S, Lawler E. Power and Politics in Organizations. San Francisco, CA: Jossey-Bass; 1980.
Blum D, Knudson M, Henig RM, eds. A Field Guide for Science Writers: The Official Guide of the National
Association of Science Writers. 2nd ed. New York, NY: Oxford University Press; 2006.
Brownson RC, Malone BR. Communicating public health information to policy makers. In: Nelson DE,
Brownson RC, Remington PL, Parvanta C, eds. Communicating Public Health Information Effectively: A Guide
for Practitioners. Washington, DC: American Public Health Association; 2002:97114.
Dumro R, Duke S. The Web and e-mail in science communication. Science Communication. 2003;24:283-308.
Friedman SM, Dunwoody S, Rogers CL, editor. Scientists and Journalists: Reporting Science as News.
New York, NY: Free Press; 1986.
Gastel B. Health Writer’s Handbook. Ames, IA: Iowa State University Press; 1998.
Greenwell M. Communicating public health information to the news media. In: Nelson DE, Brownson RC,
Remington PL, Parvanta C, eds. Communicating Public Health Information Effectively: A Guide for Practitioners.
Washington, DC: American Public Health Association; 2002:73–96.
Harris TE. Applied Organizational Communication: Principles and Pragmatics for Future Practice. Mahwah, NJ:
Lawrence Erlbaum; 2002.
Manning P. News and News Sources: A Critical Introduction. Thousand Oaks, CA: Sage; 2001.
Morgan G. Images of Organizations. 2nd ed. Thousand Oaks, CA: Sage; 1997.
Spasoff RA. Epidemiologic Methods for Health Policy. New York, NY: Oxford University Press; 1999.
Stone DA. Policy Paradox: The Art of Political Decision Making. Rev. ed. New York, NY: Norton; 2002.
Weissert CS, Weissert WG. State legislative staff influence in health policy making. J Health Polit Policy Law.
20 0 0 ; 2 5 :11211148 .
Chapter 3
5
Paling J. Strategies to help patients understand risks. BMJ. 2003;327(7417 ):745-748.
Rothman AJ, Kiviniemi MT. Treating people with information: An analysis and review of approaches to
communicating health risk information. J Natl Cancer Inst Monogr. 1999(25):44-51.
Sandman PM, Weinstein ND, Hallman WK. Communications to reduce risk underestimation and
overestimation. Risk Decis Policy. 1998;3:93-108.
6
Schwartz LM, Woloshin S. The case for letting information speak for itself. Eff Clin Pract. 2001;4(2):76-79.
Schwartz LM, Woloshin S, Black WC, Welch HG. The role of numeracy in understanding the benefit of
screening mammography. Ann Intern Med. 1997;127(11):966-972.
Woloshin S, Schwartz LM, Moncur M, Gabriel S, Tosteson AN. Assessing values for health: Numeracy matters.
Med Decis Making. 2001;21(5):382-390.
7
Engle RW, Tuholski SW, Laughlin JE, Conway ARA. Working memory, short-term memory, and general fluid
intelligence: A latent-variable approach. J Exp Psychol Gen. 1999;128(3):309-331.
Miller GA. The magical number seven, plus or minus two: Some limits on our capacity for processing
information. Psychol Rev. 1956;63:81-97.
8
Hastie R, Dawes RM. Rational Choice in an Uncertain World: The Psychology of Judgment and Decision Making.
Thousand Oaks, CA: Sage; 2001.
Plous S. The Psychology of Judgment and Decision Making. Philadelphia, PA; Temple University Press; 1993.
9
Eveland W, Cortese J, Park J, Dunwoody S. How Web site organization influences free recall, factual knowledge,
and knowledge structure. Hum Commun Res. 2004;30(2):208-233.
Nielsen J. Designing Web Usability. Indianapolis, IN: New Riders; 2000.
42
10
Johnson BB. Further notes on public response to uncertainty in risks and science. Risk Anal. 2003;23(4):781-789.
11
Fischhoff B, Bostrom A, Quadrel MJ. Risk perception and communication. Annu Rev Public Health.
1993;14(14 ):183-203.
Hopwood P. Breast cancer risk perception: What do we know and understand? Breast Cancer Res.
2000;2(6):387-391.
Rothman AJ, Kiviniemi MT. Treating people with information: An analysis and review of approaches
to communicating health risk information. J Natl Cancer Inst Monogr. 1999(25):44-51.
12
Niederdeppe J, Hornik RC, Kelly BJ, et al. Examining the dimensions of cancer-related information seeking and
scanning behavior. Health Commun. 2007;22(2):153-167.
Shim M, Kelly B, Hornik R. Cancer information scanning and seeking behavior is associated with knowledge,
lifestyle choices, and screening. J Health Commun. 2006;11(Suppl 1):157-172.
13
Albers MJ. Communication of Complex Information: User Goals and Information Needs for Dynamic Web
Information. Mahwah, NJ: Lawrence Erlbaum; 2004.
14
Ruiter RA, Kok G, Verplanken B, Brug J. Evoked fear and effects of appeals on attitudes to performing breast
self-examination: An information-processing perspective. Health Educ Res. 2001;16(3):307-319.
Ruiter RA, Kok G, Verplanken B, van Eersel G. Strengthening the persuasive impact of fear appeals: The role of
action framing. J Soc Psychol. 2003;143(3):397-400.
Thompson TL. Handbook of Health Communication. Mahwah, NJ: Lawrence Erlbaum; 2003.
15
Croyle RT, Loftus EF, Barger SD, et al. How well do people recall risk factor test results? Accuracy and bias
among cholesterol screening participants. Health Psychol. 2006;25(3):425-432.
National Advisory Mental Health Council. Basic behavioral science research for mental health: Thought and
communication. Am Psychol. 1996;51(3):181-189.
16
Gilovich T, Griffin DW, Kahneman D. Heuristics and Biases: The Psychology of Intuitive Judgement. Cambridge,
UK; New York, NY; Cambridge University Press; 2002.
Gilovich T, Savitsky K. Like goes with like: The role of representativeness in erroneous and pseudo-scientific
beliefs. In: Gilovich T, Griffin D, Kahneman D, eds. Heuristics and Biases: The Psychology of Intuitive Judgement.
New York, NY: Cambridge University Press; 2002:617-624.
17
Hastie R, Dawes RM. Rational Choice in an Uncertain World: The Psychology of Judgment and Decision Making.
Thousand Oaks, CA: Sage; 2002;427-444.
Plous S. The Psychology of Judgment and Decision Making. Philadelphia, PA: Temple University Press; 1993.
Chapter 4
18
Chang D, Dooley L, Tuovinen JE. Gestalt theory in visual screen design—A new look at an old subject.
In: Seventh World Conference on Computers in Education. Copenhagen, Denmark: 2002.
Wertheimer M. Laws of organization in perceptual forms. In: Ellis W, ed. A Source Book of Gestalt Psychology.
London, UK: Routledge & Kegan Paul; 1938.
19
Epstein RM, Alper BS, Quill TE. Communicating evidence for participatory decision-making. JAMA.
2004;291(19):2359-2366.
20
Dillard JP, Pfau M, eds. The Persuasion Handbook: Developments in Theory and Practice. Thousand Oaks, CA:
Sage; 2002.
21
Warren TL. Prolegomena for a theory of table design. In: Zwaga HJG, Boersema T, Hoonhout HCM, eds. Visual
Information for Everyday Use: Design and Research Perspectives. London, UK: Taylor & Francis; 1999:203-208.
43
Chapter 5
22
Hastie R, Dawes RM. Rational Choice in an Uncertain World: The Psychology of Judgment and Decision
Making. Thousand Oaks, CA: Sage; 2001.
Additional sources for Table 5.1:
Abelson RP. Statistics as Principled Argument. Hillsdale, NJ: Lawrence Erlbaum; 1995.
Albers MJ. Communication of Complex Information: User Goals and Information Needs for Dynamic Web
Information. Mahwah, NJ: Lawrence Erlbaum; 2004.
Blum D, Knudson M, Henig RM, eds. A Field Guide for Science Writers: The Official Guide of the National
Association of Science Writers. 2nd ed. New York, NY: Oxford University Press: 2006.
Petticrew M, Whitehead M, Macintyre SJ, Graham H, Egan M. Evidence for public health policy on inequalities:
1: The reality according to policymakers. J Epidemiol Community Health. 2004;58(10):811-816.
Rossi PH, Lipsey MW, Freeman HE. Evaluation: A Systematic Approach. 7th ed. Thousand Oaks, CA: Sage; 2004.
Slovic P. The Perception of Risk. London; Sterling, VA: Earthscan; 2000.
Spasoff RA. Epidemiologic Methods for Health Policy. New York, NY: Oxford University Press; 1999.
Chapter 6
Additional sources for Table 6.1:
Coombs WT. Ongoing Crisis Communication: Planning, Managing, and Responding. 2nd ed. Thousand Oaks,
CA: Sage; 2007.
Fearn-Banks K. Crisis Communications: A Casebook Approach. Mahwah, NJ: Lawrence Erlbaum; 2002.
Reynolds B, Galdo JH, Sokler L. Crisis and Emergency Risk Communication. Atlanta, GA: Centers for Disease
Control and Prevention; 2002.
Seeger MW, Sellnow TL, Ullmer RR. Communication and Organizational Crisis. Westport, CT: Prager; 2003.
Additional sources for Table 6.2:
Peters E, Hibbard J, Slovic P, Dieckmann N. Numeracy skill and the communication, comprehension, and use
of risk-benefit information. Health Aff (Millwood). 2007;26(3 ):741-748.
Peters E, Dieckmann N, Dixon A, Hibbard JH, Mertz CK. Less is more in presenting quality information to
consumers. Med Care Res Rev. 2007;64(2):169-190.
Chapter 7
Additional sources for Figure 7.1:
Birkland TA. An Introduction to the Policy Process: Theories, Concepts, and Models of Public Policy Making.
2nd ed. Armonk, NY: M.E. Sharpe; 2005.
Longest BB. Health Policymaking in the United States. 4th ed. Ann Arbor, MI: Health Administration Press; 2005.
44
Notes:
NIH Publication No. 11-7724
Printed September 2011